Pati­ent Expe­ri­en­ces: Prism Glas­ses for Clus­ter Hea­da­ches

On this page, you will find detail­ed reports from peo­p­le who pre­vious­ly suf­fe­r­ed from dia­gno­sed clus­ter hea­da­ches and descri­be their expe­ri­en­ces with my prism glas­ses. All of them recei­ved an offi­ci­al dia­gno­sis of clus­ter hea­da­che from neu­ro­lo­gists, and many were addi­tio­nal­ly trea­ted in spe­cia­li­zed cli­nics such as the Schmerz­klink in Kiel, Ger­ma­ny or the Migrai­ne and Hea­da­che Cli­nic König­stein, Ger­ma­ny).

IIn sup­port groups and forums, the­se indi­vi­du­als were often unable to share their expe­ri­en­ces, as dis­cus­sions the­re are usual­ly limi­t­ed to medi­ca­ti­on-based tre­at­ments only. Many pati­ents – and I as well – con­sider this a serious mista­ke. Today, the­re is a signi­fi­cant and gro­wing num­ber of peo­p­le who have beco­me per­ma­nent­ly sym­ptom-free after the cor­rect cor­rec­tion of their bino­cu­lar visi­on dys­func­tion (BVD) with a prism glas­ses pre­scrip­ti­on.

More than 80 pati­ents share their expe­ri­en­ces on You­Tube, Insta­gram and in two Face­book sup­port groups (one public Face­book group and one pri­va­te Face­book group). Plea­se note: The­se social media chan­nels are in Ger­man. All of them repor­ted an extre­me­ly high level of suf­fe­ring: many were unable to work, some had been gran­ted disa­bi­li­ty pen­si­ons, and a few had even deve­lo­ped sui­ci­dal thoughts due to the immense bur­den. All of them regai­ned their lives with the help of a cor­rect­ly fit­ted prism glas­ses cor­rec­tion.

In addi­ti­on to the­se clus­ter headache–specific expe­ri­en­ces, you can also find gene­ral pati­ent expe­ri­en­ces with bino­cu­lar visi­on dys­func­tion and prism glas­ses here:
Gene­ral Pati­ent Expe­ri­en­ces: Bino­cu­lar Visi­on Dys­func­tion & Prism Glas­ses.

Expe­ri­ence Report: Clus­ter Hea­da­ches – 3 Emer­gen­cy Room Visits, Then an Eye Patch Brought Reli­ef

(Video in Ger­man)

In this video, a young man shares his expe­ri­ence with epi­so­dic clus­ter hea­da­ches, which he has suf­fe­r­ed from sin­ce 2018.
In autumn 2024, the pain beca­me so seve­re that, in despe­ra­ti­on, he wore an eye patch for 10 days. With the patch on, his attacks almost com­ple­te­ly dis­ap­peared. When he remo­ved it, the clus­ter attacks retur­ned — las­ting up to 60 minu­tes.

This cle­ar­ly shows that his clus­ter hea­da­ches were trig­ge­red by bino­cu­lar visi­on /​ bino­cu­lar visi­on dys­func­tion.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches – Declared “Unt­reata­ble”, Now Pain-Free for 2 Years With My Prism Glas­ses

(Video in Ger­man)

At first, using an eye patch brought him reli­ef. Today, he has been com­ple­te­ly pain-free for two years thanks to his prism glas­ses — and he no lon­ger needs any medi­ca­ti­on. Con­gra­tu­la­ti­ons!

Pezhman C. wan­ted to share his expe­ri­ence in seve­ral clus­ter hea­da­che self-help groups, but he was not allo­wed to do so due to their “group rules”.

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Expe­ri­ence Report: Hel­p­less Hel­per – A Pro­fes­sio­nal Fire­figh­ter Caught Bet­ween Excru­cia­ting Clus­ter Hea­da­ches and Medi­cal Igno­rance

I am a pro­fes­sio­nal fire­figh­ter with over twen­ty years of ser­vice — phy­si­cal­ly fit, resi­li­ent, and accus­to­med to stress. At least that’s what I thought. But for about 16 years, I have been aff­lic­ted by a type of hea­da­che I once belie­ved impos­si­ble: clus­ter hea­da­ches.

The­se attacks strike wit­hout war­ning, often wit­hout any clear trig­ger. A uni­la­te­ral, stab­bing, dril­ling pain that forces ever­y­thing else into the back­ground. When peo­p­le hear the dia­gno­sis for the first time, I can only descri­be it in one way:
It feels as if someone is pres­sing a red-hot drill behind your eye and slow­ly car­ving their way through.

As a fire­figh­ter with exten­si­ve emer­gen­cy medi­cal expe­ri­ence (ambu­lan­ces, inten­si­ve care trans­port, neo­na­tal trans­port, emer­gen­cy phy­si­ci­ans, emer­gen­cy respon­se vehic­les), I have seen and endu­red a lot — but the­se pains push me to the edge of des­pair. A clus­ter epi­so­de typi­cal­ly lasts 7–10 weeks, with attacks seve­ral times a day, each las­ting 30–90 minu­tes. Most­ly at night, one to two hours after fal­ling asleep. Sleep beco­mes impos­si­ble.

Medi­ca­ti­on helps — but not always. And the more potent drugs come with serious side effects. They often felt like the “last resort”, yet even they fre­quent­ly fai­led when the demon of pain raged at full force.

Over the years I tra­vel­led thou­sands of kilo­me­t­res from one spe­cia­list to ano­ther: neu­ro­lo­gists, pain spe­cia­lists, radio­lo­gists, alter­na­ti­ve prac­ti­tio­ners — often pay­ing out of pocket. Slow­ly I rea­li­zed that con­ven­tio­nal medi­ci­ne tre­ats only the sym­ptoms, never the cau­se. Oxy­gen, suma­trip­tan, high-dose cor­ti­cos­te­ro­ids and simi­lar medi­ca­ti­ons beca­me my con­stant com­pa­n­ions, with only mode­st effect.

Dri­ven by the desi­re not to remain depen­dent on the phar­maceu­ti­cal indus­try and its sol­diers, I sear­ched tire­less­ly for approa­ches wit­hout medi­ca­ti­on that might final­ly address the ori­gin of the pain. I refu­sed to sur­ren­der to a fate dic­ta­ted by others — a stance some doc­tors label­led as stub­born or unco­ope­ra­ti­ve. I expe­ri­en­ced this jud­ge­ment as sheer arro­gan­ce.

In my pro­fes­si­on, empa­thy is essen­ti­al. One human being helps ano­ther in need. The­re is even a pro­fes­si­on legal­ly obli­ga­ted to it.

For­t­u­na­te­ly, I even­tual­ly found video-based, uncen­so­red expe­ri­ence reports from fel­low suf­fe­rers who beca­me pain-free thanks to prism glas­ses. All of them had been dia­gno­sed with a bino­cu­lar visi­on dys­func­tion (hete­ro­pho­ria) through a more pre­cise mea­su­re­ment method — some­thing stan­dard exami­na­ti­ons had over­loo­ked.

Could a pair of prism glas­ses tru­ly defeat the clus­ter-hea­da­che demon by cor­rec­ting a latent mis­a­lignment of the eyes? At first, it sound­ed too simp­le — too good — to be true.

The reac­tions from neu­ro­lo­gists and pain spe­cia­lists con­fu­sed me at first. I encoun­te­red only rejec­tion and scep­ti­cism. The pos­si­bi­li­ty that a bino­cu­lar visi­on dys­func­tion (BVD) might trig­ger or inten­si­fy clus­ter hea­da­ches was dis­missed out­right. Some even said: „If the glas­ses help you, then you never had clus­ter hea­da­ches!”

This from the very doc­tors who had dia­gno­sed me in the first place.

I deci­ded to try the prism glas­ses — and that decis­i­on chan­ged ever­y­thing.
Within just a few days, the fre­quen­cy of my attacks noti­ce­ab­ly decreased.

I am deep­ly gra­teful for the peo­p­le who put the pati­ent, the human being, at the cent­re — as I do at the begin­ning of every shift. Bey­ond the enorm­ous cos­ts of long-term medi­ca­ti­on, we must ask why a medi­cal sys­tem clings to estab­lished dog­mas ins­tead of deve­lo­ping fur­ther for the bene­fit of tho­se affec­ted.

My hope is that — just like the AXOMERA the­ra­py — prism glas­ses will final­ly gain the accep­tance they deser­ve in the tre­at­ment of clus­ter hea­da­ches, rather than being dis­missed as quackery.

I thank Jür­gen Pesch­low for his tire­less dedi­ca­ti­on. He gives peo­p­le back a pie­ce of the life they remem­ber from befo­re their ill­ness.
I have never met anyo­ne who suf­fe­r­ed from clus­ter hea­da­ches from birth. In each epi­so­de I lon­ged for the days befo­re the unin­vi­ted guest appeared — the guest who bar­ges in wit­hout war­ning and shows no mer­cy.

Expe­ri­ence Report: Pain-Free With Prism Glas­ses – Clus­ter Hea­da­ches Return Imme­dia­te­ly Wit­hout Them

(Video in Ger­man)

In this video, a young woman vivid­ly explains why she has been free of clus­ter hea­da­ches for more than a year while wea­ring her prism glas­ses.
During the sum­mer of 2021, she took off her prism glas­ses for a short time while at the beach — and the clus­ter hea­da­che retur­ned within minu­tes. Sin­ce then, the pat­tern has remain­ed the same: with the prism glas­ses she is com­ple­te­ly sym­ptom-free, and wit­hout them the attacks come back almost imme­dia­te­ly.

This expe­ri­ence made it unmist­aka­b­ly clear to her how clo­se­ly her clus­ter-hea­da­che attacks are con­nec­ted to her bino­cu­lar visi­on dys­func­tion (hete­ro­pho­ria).

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Expe­ri­ence Report: Pain Cli­nic König­stein – Chro­nic Clus­ter Hea­da­ches, The­ra­py-Resistant

(Video in Ger­man)

Mr. Kaf­ex­hol­li suf­fe­r­ed from up to 15 clus­ter hea­da­che attacks per day and was admit­ted five times to the Pain Cli­nic König­stein. Despi­te exten­si­ve tre­at­ment and mul­ti­ple medi­ca­ti­ons, not­hing brought reli­ef — the clus­ter hea­da­ches con­tin­ued unab­a­ted. Ever­y­thing chan­ged when he recei­ved a spe­ci­al­ly tail­o­red prism glass cor­rec­tion. Sin­ce then, he has had his life back: no more dai­ly ago­ny, no more end­less attacks — and he can final­ly play with his child­ren again.

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Expe­ri­ence Report: 10 Days With an Eye Patch – 10 Days Wit­hout Chro­nic Clus­ter Hea­da­ches

(ori­gi­nal­ly writ­ten in Ger­man in the pri­va­te Face­book group)

Clus­ter hea­da­ches — I never thought this could hap­pen

I never ima­gi­ned that I would one day be pain-free. For years I suf­fe­r­ed from clus­ter hea­da­ches — one of the worst pains a human can expe­ri­ence. The attacks came sud­den­ly, with an inten­si­ty that com­ple­te­ly shat­te­red my dai­ly life. Medi­ca­ti­on, oxy­gen the­ra­py, dif­fe­rent tre­at­ments — not­hing real­ly hel­ped. I tried ever­y­thing, and at some point I had almost lost hope of ever living wit­hout pain.

Ever­y­thing chan­ged a year ago — thanks to the glas­ses made by Mr. Jür­gen Pesch­low. Short­ly after I put them on for the first time, I noti­ced a dif­fe­rence:
the pain vanis­hed — and it has not retur­ned to this day.
It felt as if someone had flip­ped a switch.

Today, one year later, I am still com­ple­te­ly pain-free. Occa­sio­nal­ly I feel a slight twin­ge, but not­hing worth men­tio­ning. I no lon­ger take any medi­ca­ti­on, I no lon­ger use oxy­gen — not­hing.

My ever­y­day life has beco­me so much easier. For the first time, I can enjoy life wit­hout con­stant­ly fea­ring the next attack. Of cour­se, I still pay atten­ti­on to poten­ti­al trig­gers, but I feel freer than ever.

I never thought I could live com­ple­te­ly wit­hout pain. The­se glas­ses chan­ged my life. I am end­less­ly gra­teful to Mr. Pesch­low — for giving me back the life I had wis­hed for for so many years.

And now I also know what to do if the hea­da­ches ever start to return:
I will imme­dia­te­ly sche­du­le an appoint­ment with Mr. Pesch­low.

If I’ve lear­ned one thing, it’s this:
Never give up hope. Some­ti­mes the solu­ti­on comes from a direc­tion you would never expect.

War­mest gree­tings from the bot­tom of my heart to Ber­lin.

Expe­ri­ence Report: 10 Days With an Eye Patch – 10 Days Wit­hout Chro­nic Clus­ter Hea­da­ches

(Video in Ger­man)

In this video, a chro­nic clus­ter hea­da­che suf­fe­r­er from Duis­burg shares his expe­ri­ence.
Using a medi­cal eye patch, he beca­me com­ple­te­ly pain-free after just one to two days.

Nor­mal­ly, I recom­mend remo­ving the eye patch again after the third day.
But he deci­ded not to — sim­ply becau­se being pain-free felt “too good” after so many years of suf­fe­ring.

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Expe­ri­ence Report: 20 Years of Chro­nic Clus­ter Hea­da­ches – Now Pain-Free for Over Two Years

(Video in Ger­man)

In this report, Dirk Möh­ring shares his sto­ry. Befo­re recei­ving his prism glas­ses, he suf­fe­r­ed from seve­re chro­nic clus­ter hea­da­ches for more than 20 years. He tried every tre­at­ment con­ven­tio­nal medi­ci­ne has to offer, yet the suf­fe­ring con­tin­ued — made even worse by the strong side effects of the many medi­ca­ti­ons he was pre­scri­bed. Over the years, Mr. Möh­ring beca­me unable to work, was gran­ted disa­bi­li­ty sta­tus, and even­tual­ly deve­lo­ped osteo­po­ro­sis as a result of long-term cor­ti­so­ne use.

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Expe­ri­ence Report: 4 Years with Prism Glas­ses and Clus­ter Hea­da­ches

(Ori­gi­nal report writ­ten by Dome­nik L. from Pin­ne­berg in the pri­va­te Ger­man-spea­king Face­book group.)

Hel­lo and good evening ever­yo­ne,

Almost four years ago, I visi­ted Mr. Pesch­low in Ber­lin for the first time.
At that time, I had alre­a­dy been suf­fe­ring from epi­so­dic clus­ter hea­da­ches for eight long and pain­ful years.

Today I can say that tho­se eight years remain­ed the only eight — becau­se sin­ce recei­ving my prism glas­ses, my clus­ter hea­da­ches have stay­ed almost com­ple­te­ly away. So much so that I would prac­ti­cal­ly say: I no lon­ger have this dise­a­se.

Last Decem­ber, I had a brief breakth­rough epi­so­de, but honest­ly, it was hard­ly worth men­tio­ning. The attacks were far fewer, much mil­der, and signi­fi­cant­ly shorter in dura­ti­on.

I can’t even remem­ber the last time I nee­ded sick lea­ve becau­se of clus­ter hea­da­ches. I also haven’t taken any of the usu­al medi­ca­ti­ons for years.

At my worst, I was taking 150 mg of cor­ti­so­ne per day, often for up to four weeks, becau­se the high-dose “pul­se the­ra­py” only work­ed to a limi­t­ed ext­ent.

When I think back to that time today, one name imme­dia­te­ly comes to mind: Pesch­low. Becau­se thanks to you, Mr. Pesch­low, I no lon­ger need any of that “devil’s medi­ci­ne.”

I still remem­ber exact­ly how I found you.

It was ano­ther slee­p­less night, one attack after ano­ther. At some point — around 4 a.m., after sur­vi­ving yet ano­ther attack — I star­ted Goog­ling again for the mil­lionth time, despera­te­ly sear­ching for some­thing I hadn’t tried yet. Some­thing to final­ly get rid of this demon.

I sear­ched end­less­ly for pos­si­ble trig­gers in every ima­gi­nable com­bi­na­ti­on.
And then it hap­pen­ed: I found the web­site of Mr. Pesch­low and star­ted stu­dy­ing it.
I read ever­y­thing mul­ti­ple times and rea­li­zed the­re was someone out the­re who, even though he wasn’t affec­ted hims­elf, was deep­ly com­mit­ted to this topic — someone who not only unders­tood it, but who had deve­lo­ped a way to actual­ly help pati­ents. And thank God, it works.

Seve­ral days pas­sed — not a sin­gle day wit­hout rere­a­ding his reports — and I even told fami­ly mem­bers (migrai­ne suf­fe­rers) about him. Short­ly after­ward, I wro­te a post in one of the clus­ter hea­da­che groups, whe­re men­tio­ning the name “Pesch­low” today imme­dia­te­ly leads to exclu­si­on.

Back then, my post wasn’t dele­ted. In fact, for the first time, peo­p­le actual­ly tal­ked about it.

Some found it absurd or accu­sed it of being a money-making sche­me. Others, howe­ver, were wil­ling to have a reasonable con­ver­sa­ti­on.

At that time, Mr. Pesch­low hims­elf was still in that group.
Not even 24 hours after my post, he wro­te to me per­so­nal­ly on Face­book — and that was the begin­ning of the end of my long, pain­ful jour­ney.

We exch­an­ged mes­sa­ges for a few days, and even­tual­ly I thought:
“May­be this is the one thread I need to pull to take the fire away from the devil.”

Tog­e­ther with my wife — hea­vi­ly pregnant at the time — I tra­ve­led to Ber­lin to meet Mr. Pesch­low and give the prism glas­ses a real chan­ce.

Once the­re, ever­y­thing went quick­ly — except for the eye mea­su­re­ments.
For this, Mr. Pesch­low took all the time that was nee­ded.
I belie­ve it took around 2 hours. Then we tal­ked brief­ly, and off we went back home.

About a week later, I recei­ved the mes­sa­ge that the glas­ses were on their way — the exci­te­ment was huge!

After about a year, I retur­ned for a cor­rec­tion becau­se a few attacks were still brea­king through, alt­hough even then they were not­hing com­pared to befo­re.
Sin­ce recei­ving the cor­rec­ted glas­ses, ever­y­thing has been quiet — and I am gra­teful every sin­gle day that Mr. Pesch­low inves­ted so much care and effort, and still puts so much ener­gy into this who­le topic.

I once told him: “They should put your face on a coin!” — and I still belie­ve that today.

Now, after three years, some “wear and tear” on the len­ses is unavo­ida­ble — espe­ci­al­ly in my line of work. A few scrat­ches have appeared over time. I hope this doesn’t affect the effect of the glas­ses.
I’ll pro­ba­b­ly find that out in the coming weeks or months.
But as of now, ever­y­thing is per­fect and the­re are no signs of ano­ther epi­so­de.

I wish all of you a good start into the week and hope that ever­yo­ne suf­fe­ring from clus­ter hea­da­ches can be hel­ped with the prism glas­ses and the “Pesch­low Method.”

Many gree­tings from Pin­ne­berg.

Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches – Now Able to Enjoy Alco­hol Wit­hout Pain

(Video in Ger­man)

Mr. Dirk Möh­ring from Cas­trop-Rau­xel suf­fe­r­ed from chro­nic clus­ter hea­da­ches for more than 20 years befo­re recei­ving his prism glas­ses. During this time, he was given so much cor­ti­so­ne that he ulti­m­ate­ly requi­red two hip repla­ce­ments. In this video, he explains how he remain­ed com­ple­te­ly pain-free when drin­king alco­hol — regard­less of the amount — as long as he cover­ed the pain­ful eye with a medi­cal eye patch.This reac­tion cle­ar­ly shows that his clus­ter hea­da­ches were trig­ge­red by bino­cu­lar visi­on /​ a bino­cu­lar mis­a­lignment.

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Expe­ri­ence Report: Clus­ter Hea­da­ches and the Cor­rec­tion of Bino­cu­lar Visi­on Dys­func­tion

(Video in Ger­man)

In this report, Ms. Reek shares her sto­ry of suf­fe­ring from seve­re chro­nic clus­ter hea­da­ches, which even­tual­ly led her to tra­vel from Greece to Ber­lin for a pre­cise cor­rec­tion of her bino­cu­lar visi­on dys­func­tion. Befo­re her appoint­ment, she had alre­a­dy expe­ri­en­ced signi­fi­cant reli­ef with a medi­cal eye patch. She descri­bed fee­ling “reborn,” as she was com­ple­te­ly pain-free for three days while wea­ring it. Her dia­gno­sis of chro­nic clus­ter hea­da­che was made at the Schmerz­kli­nik Kiel (Pain Cli­nic Kiel).

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Expe­ri­ence Report: Prism Glas­ses and Clus­ter Hea­da­che

(Ori­gi­nal report writ­ten in Ger­man – shared in the pri­va­te Face­book group)

Hel­lo dear clus­ter heads,

yes­ter­day I went out, had some drinks – and I didn’t get any clus­ter hea­da­ches at all. I still have a very slight pres­su­re at the back of my head, but it’s not­hing worth men­tio­ning. I honest­ly can’t belie­ve that the prism glas­ses help me 99%, and I can­not thank Mr. Pesch­low and his team enough.

Loo­king back at the many years I suf­fe­r­ed from chro­nic clus­ter hea­da­ches, with up to 20 attacks per day, when even mor­phi­ne bare­ly hel­ped… I was con­side­red aus­the­ra­piert (medi­cal­ly exhaus­ted). What a dif­fe­rence! I got my life back. I have been pain-free for years now with my prism glas­ses — it’s sim­ply unbe­lie­va­ble and tru­ly impos­si­ble to put into words.

My name is Gaz­mend Kaf­ex­hol­li. I went to Dr. Char­ly Gaul, I was trea­ted five times at the Schmerz­kli­nik König­stein, and I thought no one could help me any­mo­re.

Expe­ri­ence Report: 4 Years with Prism Glas­ses for Chro­nic Clus­ter Hea­da­ches

(Video in Ger­man)

Chro­nic clus­ter hea­da­ches – how life can chan­ge with the right prism glas­ses. In this expe­ri­ence report, a long-term suf­fe­r­er of chro­nic clus­ter hea­da­ches shares how her con­di­ti­on has chan­ged over the cour­se of four years with a pre­cis­e­ly fit­ted prism cor­rec­tion — and how the attacks have beco­me mana­geable or dis­ap­peared enti­re­ly.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches – “I didn’t want to be pum­ped full of medi­ca­ti­on any­mo­re”

(Video in Ger­man)

Alex­an­dra Tschu­fe­nig noti­ced that her clus­ter hea­da­ches were signi­fi­cant­ly redu­ced when she cover­ed one eye with an eye patch. Becau­se of this impro­ve­ment, she tra­vel­led to Ber­lin for a pre­cise prism cor­rec­tion. The eye patch helps most peo­p­le with clus­ter hea­da­ches — and her case is a clear exam­p­le. In the video, plea­se look clo­se­ly:
When I remo­ve the prism test frame and she puts on her own glas­ses (wit­hout prism cor­rec­tion), her left eyelid imme­dia­te­ly drops. This is a typi­cal reac­tion in peo­p­le with an unt­rea­ted ver­ti­cal bino­cu­lar mis­a­lignment.

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Expe­ri­ence Report: “The Devil in My Head”

(Ori­gi­nal text writ­ten by Son­ja F. in 2020 for the foun­ding of the pri­va­te Face­book sup­port group. The report is trans­la­ted from Ger­man.)

The devil has been visi­ting me sin­ce I was 19… over and over again. For a long time, I had no idea what was hap­pe­ning to me. The pain was almost unbe­ara­ble. Every night at the same time. Some­ti­mes once, some­ti­mes three times a night. And again every mor­ning after waking up. It felt as if someone were dri­ving a glo­wing dag­ger into my eye. The devil in my head. The eye hurt unbe­ara­b­ly. My nasal bone felt bro­ken. My jaw and neck ached, the­re was pres­su­re at the temp­le. My eye swel­led shut and wate­red. My nose ran. I bro­ke out in sweat. Some­ti­mes for hours. I went to a doc­tor, who reassu­red me and said that not­hing was wrong with me. I was healt­hy. Thank you — but that didn’t help at all. You don’t ima­gi­ne pain like this. The­se are not just “some hea­da­ches” — I have tho­se too. This is hell on earth. And then sud­den­ly, they dis­ap­pear. Life goes on as nor­mal. But they come back… every autumn. Some­ti­mes in spring. But appar­ent­ly, not­hing is wrong with me. I’m healt­hy.

In 2010, a doc­tor final­ly gave the devil a name: clus­ter hea­da­che.
She told me it wasn’t dan­ge­rous — it just felt like it. She said sports and a healt­hy life­style were good, but they wouldn’t help. The devil didn’t care about that.
So what then?
Trip­tans — injec­tions. They work­ed, and they work­ed fast. The devil kept coming back, but at least I had some­thing to fight him with. The side effects were tole­ra­ble — until a few years ago. Then they weren’t any­mo­re. Nasal sprays weren’t bet­ter. Tablets didn’t help. The side effects beca­me unbe­ara­ble. I ended up in the hos­pi­tal becau­se I sim­ply couldn’t cope any­mo­re. I felt like I was about to have a heart attack. That was the end of trip­tans for me.
Then cor­ti­so­ne. Once — and never again.

I have two small child­ren. I need to func­tion, at least for them. Sick notes don’t help. I would rather work over­ti­me than endu­re this. But what could I do? The­re was only one opti­on: endu­re it. Hope that the epi­so­de would end soon and that the devil wouldn’t beco­me chro­nic.

Every evening I was exhaus­ted, com­ple­te­ly drai­ned, yet afraid to sleep — becau­se I knew the devil would come and dri­ve his glo­wing dag­ger into my eye. Again and again. But I was tired. I had to sleep… until the devil retur­ned.

He rip­ped me out of sleep. I jum­ped out of bed, hoping the child­ren wouldn’t wake up. Into the bath­room. A cold wash­cloth. Half a can of ener­gy drink. One or two strong ciga­ret­tes. Any­thing to con­strict the ves­sels — to ease the pain. I felt sick, diz­zy. Drank the ener­gy drink. It was bare­ly beara­ble. I wan­ted to jump out of the win­dow — just for it to stop. But I have two small child­ren who need me. I have to fight. For them. And for my hus­band.

I con­nec­ted mys­elf to oxy­gen. Cold cloth on the eye. Intern­al­ly I beg­ged: “Go away.”

Even­tual­ly, when­ever he felt like it, the devil let go and dis­ap­peared. I was reli­e­ved and exhaus­ted. Then the trembling star­ted, and the chills. Back to bed. One epi­so­de sur­vi­ved. But when will he return? Tonight? Tomor­row? Will it be calm until spring? Until autumn?
How long will this epi­so­de last? Four weeks? Six? Eight? Will it beco­me chro­nic?

I didn’t know. I could only hope. And then I found a new hope.

A spe­cia­list in Ber­lin — an opto­me­trist. He deve­lo­ped his own mea­su­ring tech­ni­que for bino­cu­lar dys­func­tion (BVD). He sees a con­nec­tion bet­ween clus­ter hea­da­che and this mis­a­lignment.
I knew for years that I had one — but my oph­thal­mo­lo­gist said it was minor and that I com­pen­sa­ted well.
Is this com­pen­sa­ting actual­ly the pro­blem?
I now belie­ve it is.

The theo­ry made sen­se, and after the appoint­ment I had the big­gest aha moment of my life. After wea­ring the mea­su­ring glas­ses for a while, I rea­li­sed how dis­tor­ted my visi­on actual­ly is. It took time until I could com­pen­sa­te again and see “nor­mal­ly”. My hus­band said he could lite­ral­ly see how my enti­re facial expres­si­on chan­ged. The opto­me­trist even simu­la­ted my usu­al visi­on for him — hol­ding a lens in front of his eye — and my hus­band said it made him diz­zy imme­dia­te­ly and he would never dare dri­ve like that. I am abso­lut­e­ly cer­tain that the prism glas­ses will help. I’m loo­king for­ward to recei­ving them in 2–3 weeks.
And I will report back — whe­ther the devil can be dri­ven away.

The opto­me­trist has alre­a­dy hel­ped many clus­ter hea­da­che suf­fe­rers. Why not me too?
And may­be many more could be hel­ped one day, if his theo­ry and his mea­su­re­ment tech­ni­que were more wide­ly known — and if neu­ro­lo­gists would lis­ten…

Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­che – She Got Her Life Back

(Video in Ger­man)

In this video, Mrs. Reek from Greece shares her expe­ri­ence with a prism cor­rec­tion. She suf­fe­r­ed for many years from chro­nic clus­ter hea­da­ches. Sin­ce none of the medi­ca­ti­ons brought real reli­ef, she kept sear­ching online for alter­na­ti­ve solu­ti­ons — and this is how she even­tual­ly found my page on Clus­ter Hea­da­ches.

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Expe­ri­ence Report: Clus­ter Hea­da­che – Pain-Free for Three Years

(Video in Ger­man)

In this video, Mr. Micha­el Grie­ger from Colo­gne shares his expe­ri­ence with a prism cor­rec­tion. For many years, he suf­fe­r­ed from seve­re clus­ter hea­da­ches. A neu­ro­sti­mu­la­tor was implan­ted, but it did not help — yet he has now been com­ple­te­ly pain-free for three years thanks to a prism cor­rec­tion. Like all other affec­ted indi­vi­du­als, he is igno­red by neu­ro­lo­gists, and his expe­ri­ence reports are dele­ted in the clus­ter hea­da­che self-help groups by CSG.

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Expe­ri­ence Report: Clus­ter Hea­da­che – He Got His Life Back!

(Video in Ger­man)

In this video, Mr. Robin Kel­ler­mann from Essen talks about his expe­ri­ence with my prism cor­rec­tion. For many years, he suf­fe­r­ed from chro­nic clus­ter hea­da­ches and beca­me unable to work. Then he came to me — and with a prism cor­rec­tion, he has now been com­ple­te­ly pain-free for 18 months. Befo­re that, he had to take a lar­ge num­ber of medi­ca­ti­ons, none of which he needs any­mo­re.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches and Bino­cu­lar Visi­on Dys­func­tion

(Video in Ger­man)

In this video, Marc Moreil­lon and his wife talk about the impact of a prism cor­rec­tion. For many years, he suf­fe­r­ed from chro­nic clus­ter hea­da­ches. The prism glas­ses help him signi­fi­cant­ly — this is a very authen­tic and insightful tes­ti­mo­ni­al.

Befo­re cor­rec­ting his bino­cu­lar visi­on dys­func­tion, he expe­ri­en­ced noti­ce­ab­ly fewer clus­ter hea­da­che attacks when wea­ring an eye patch.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches Resol­ved with a Prism Glas­ses Cor­rec­tion

(Video in Ger­man)

“I’ve got my life back!” In this video, Robin Kel­ler­mann shares his sto­ry. He pre­vious­ly suf­fe­r­ed from chro­nic clus­ter hea­da­ches and was trea­ted in seve­ral pain cli­nics, inclu­ding the well-known Pain Cli­nic in Kiel. Despi­te opti­mal medi­cal the­ra­py, his suf­fe­ring remain­ed extre­me­ly high.

In Febru­ary 2022, he final­ly came to Ber­lin to see me. Befo­re that, wea­ring an eye patch had alre­a­dy pro­vi­ded him with signi­fi­cant reli­ef.

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Expe­ri­ence Report: How to Use an Eye Patch Cor­rect­ly for Clus­ter Hea­da­ches

(Video in Ger­man)

In this video, Micha­el Grie­ger explains how to cor­rect­ly use an eye patch for clus­ter hea­da­ches. Many peo­p­le expe­ri­ence signi­fi­cant­ly fewer attacks with an eye patch — some even beco­me com­ple­te­ly pain-free after just two to three days.

Don’t sim­ply belie­ve it — test it yours­elf. The eye patch helps the majo­ri­ty of suf­fe­rers. If it does, you likely have a bino­cu­lar visi­on dys­func­tion.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches – Only His Fami­ly Kept Him Ali­ve

(Video in Ger­man)

A brief back­ground: My hus­band, soon to be 34 years old, has been suf­fe­ring from clus­ter hea­da­ches sin­ce March 2017. He curr­ent­ly has a disa­bi­li­ty card with a 50% rating — some­thing I would instant­ly throw away if I could. Even if he were gran­ted ear­ly reti­re­ment, it wouldn’t mat­ter. I am sim­ply so gra­teful. When my hus­band said that the pres­su­re sud­den­ly dis­ap­peared with the prism glas­ses, I had tears in my eyes.

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Expe­ri­ence Report: Clus­ter Hea­da­ches – Final­ly Pain-Free

(Video in Ger­man)

In this video, a young woman who pre­vious­ly suf­fe­r­ed sever­ely from epi­so­dic clus­ter hea­da­ches reports on her expe­ri­ence with my prism glas­ses. Reports like hers are imme­dia­te­ly dele­ted in the CSG clus­ter-hea­da­che sup­port groups — pre­ven­ting others from fin­ding out that clus­ter hea­da­ches can be redu­ced wit­hout medi­ca­ti­on, or as in her case, even com­ple­te­ly resol­ved with a prism glas­ses cor­rec­tion.

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Expe­ri­ence Report: Clus­ter Hea­da­ches? Pain-Free!

(Video in Ger­man)

Meh­met suf­fe­r­ed sever­ely from clus­ter hea­da­ches. Befo­re tra­ve­ling from Linz to see me, he dis­co­ver­ed that wea­ring an eye patch pre­ven­ted attacks that would other­wi­se occur — a very strong indi­ca­tor of a bino­cu­lar visi­on dys­func­tion. That’s why he came to Ber­lin for a pre­cise cor­rec­tion. After recei­ving his indi­vi­du­al­ly adjus­ted prism glas­ses, he beca­me com­ple­te­ly sym­ptom-free.

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Expe­ri­ence Report: Clus­ter Hea­da­ches – I Beca­me Pain-Free Wit­hout Medi­ca­ti­on

(Video in Ger­man)

This is a high­ly authen­tic video report con­tai­ning important insights into the effects of prism glas­ses on clus­ter hea­da­ches. Unfort­u­na­te­ly, con­ven­tio­nal medi­ci­ne con­ti­nues to igno­re this non-phar­maceu­ti­cal opti­on for reli­e­ving or even resol­ving clus­ter hea­da­che attacks.

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Expe­ri­ence Report: Clus­ter Hea­da­ches Much Mil­der Than Befo­re

(Video in Ger­man)

Watch this authen­tic report from an epi­so­dic clus­ter hea­da­che suf­fe­r­er. I would like to point out the fol­lo­wing:
With a bino­cu­lar visi­on dys­func­tion, the eye mus­cles behind the pain­ful eye are under con­stant ten­si­on every sin­gle day. Most peo­p­le no lon­ger noti­ce this, becau­se it has always been that way for them. Howe­ver, many descri­be a per­sis­tent back­ground pain that is always pre­sent.

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Expe­ri­ence Report: Clus­ter Hea­da­ches and Bino­cu­lar Visi­on Dys­func­tion

(Video in Ger­man)

In this report, a pati­ent descri­bes how she beca­me com­ple­te­ly pain-free with my prism glas­ses. Becau­se her posts were repea­ted­ly dele­ted in the CSG clus­ter hea­da­che self-help groups, she took the initia­ti­ve and foun­ded her own Ger­man Face­book group: “Clus­ter­kopf­schmerz und Win­kel­fehl­sich­tig­keit” (“Clus­ter Hea­da­ches and Bino­cu­lar Visi­on Dys­func­tion”). You are wel­co­me to join the group and con­nect with her and many others.

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Expe­ri­ence Report: Clus­ter Hea­da­ches – I’ve Been Pain-Free for 2 Years

(Video in Ger­man)

My name is Chris­toph, and I beca­me com­ple­te­ly sym­ptom-free with a prism glas­ses cor­rec­tion. Becau­se my impro­ve­ment has been so signi­fi­cant, I crea­ted my own Insta­gram account cal­led “Clus­ter­kopf­schmerz”. The account is in Ger­man, and anyo­ne who has ques­ti­ons is very wel­co­me to mes­sa­ge me the­re.

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Expe­ri­ence Report: Clus­ter Hea­da­ches – 3 Years Pain-Free

(Video in Ger­man)

This video was recor­ded in 2021. Melis­sa Heynen has now been almost com­ple­te­ly pain-free for three years thanks to my prism glas­ses. She is a mem­ber of the Ger­man-spea­king Face­book group “Clus­ter­kopf­schmerz und Win­kel­fehl­sich­tig­keit”. You are wel­co­me to join the group and get in touch with her the­re.

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Expe­ri­ence Report: Clus­ter Hea­da­ches – First the Eye Patch Hel­ped, Then the Prism Glas­ses

(Video in Ger­man)

In this video, Tobi­as Sta­gneth shares his expe­ri­ence with prism glas­ses. He pre­vious­ly suf­fe­r­ed from chro­nic clus­ter hea­da­ches. As with many other clus­ter hea­da­che pati­ents, the eye patch was his first real reli­ef. This led him to come to Ber­lin for the cor­rec­tion of his bino­cu­lar visi­on dys­func­tion.

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Expe­ri­ence Report: Clus­ter Hea­da­ches

(Video in Ger­man)

A young woman who suf­fe­r­ed from clus­ter hea­da­ches for many years shares her expe­ri­ence with a prism glas­ses cor­rec­tion. I am always gra­teful when I can help ano­ther clus­ter pati­ent – thank you very much for this valuable report! She was pre­vious­ly trea­ted at the Pain Cli­nic Kiel, so per­haps she might con­sider sha­ring her expe­ri­ence the­re as well.

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Expe­ri­ence Report: Clus­ter Hea­da­che Returns When the Prism Glas­ses Are Taken Off

(Video in Ger­man)

Even peo­p­le with epi­so­dic clus­ter hea­da­ches expe­ri­ence attacks again when they take off their prism glas­ses … this pro­ves how strong the trig­ger of bino­cu­lar visi­on dys­func­tion must be when it is no lon­ger “cor­rec­ted” after remo­ving the prism glas­ses.

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Expe­ri­ence Report: Clus­ter Hea­da­ches Almost Gone, Ending With Images From the Pain Cli­nic

(Video in Ger­man)

Dear Mr. Gaz­mend Kaf­ex­hol­li, thank you very much for this very authen­tic report. You suf­fe­r­ed for four years from the most seve­re chro­nic clus­ter hea­da­ches, were trea­ted in pain cli­nics, recei­ved the stron­gest medi­ca­ti­ons inclu­ding mor­phi­ne, and now—thanks to my prism glasses—you are doing so well. You are able to work again; befo­re that, you were unable to work and on disa­bi­li­ty pen­si­on. I am just as hap­py about this as you are.

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Expe­ri­ence Report: Chro­nic Clus­ter Hea­da­ches

(Video in Ger­man)

Here, Mr. Fli­cken­schild talks about his expe­ri­en­ces with my prism glas­ses. He was pre­vious­ly trea­ted at the Pain Cli­nic in Kiel. Despi­te being pain-free, he was requi­red to attend a mul­ti-week reha­bi­li­ta­ti­on pro­gram. The­re, he recei­ved tre­at­ments and mas­sa­ges for his neck mus­cles. Short­ly after­ward, unfort­u­na­te­ly, the clus­ter hea­da­ches retur­ned. At the end, his girl­fri­end speaks very open­ly about the expe­ri­en­ces they made — very worth wat­ching!

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